Back at the beginning of the year we started the application process for Make-A-Wish. It's a lot of paperwork and getting doctors to sign off and then you have to wait for a committee to review the medical info to determine that your child meets their criteria. We waited patiently for months and then we got a call saying that the application was approved and we met with our Wish granters so we could formally make Aidan's Wish.
Well, since Aidan can't really tell us what he would like to do, we made the choice to wish for a Disney/Universal/Sea World trip. We thought that it would be something that the kids would love and they could make some great memories of doing something fun with Aidan. We also thought that it would be stimulating for Aidan.
Early this summer we got our official letter from Make-A-Wish with our selected dates. We decided to go the week after Thanksgiving because of Russell's vacation schedule, but it turns out that the week we've chosen is supposed to be the best week to go. So we get to see the parks decorated for Christmas which I'm really excited about.
The little kids are beyond excited and we tell Aidan about the trip and tell him all of the things that he's going to get to do. I've gotten a few smiles out of him when I talk to him about it. :)
So, aside from that bit of info, things have been okay. Aidan is doing as well as can be expected. He's relatively healthy. We've had a horrible summer with allergies and asthma due to all of the rain we've had, but he's been a trooper. We've added a new seizure med that seems to be helping, but it has some side effects that I'm not so sure of. He's had some apnea spells at night, so we did a sleep study last weekend to see what was going on. I haven't gotten the results of that back yet, but he's done well this week.
School started back the last week of August and Aidan has a new teacher this year. We were sad to see Mrs. Q, his teacher last year, leave. She did some great things with him and he was making progress using an iPad with communication apps and switches. He has also been much more responsive and smiles a lot more than he was just a year ago.
He always amazes me and every day I'm reminded just how much I love him. Here are a few pictures. He's grown so much! Thank you all for your support and prayers. <3 p="">
April 27, 2013 at Uncle Bryan and Aunt Gera's wedding in Oklahoma
October 2012
At school with his physical therapist and her therapy dog
snoozing peacefully- he's our little angel!
Russ and Aidan- October 2012
family pictures at Historic Gold Hill
5 comments:
Hey, very nice site. I came across this on Google, and I am stoked that I did. I will definitely be coming back here more often. Wish I could add to the conversation and bring a bit more to the table, but am just taking in as much info as I can at the moment. Thanks for sharing.
Walking Stick Handles
Keep Posting:)
Post a Comment