Aidan had a pretty good day today. He went through his usual rounds of Occupational, Speech, and Physical Therapies. He was also finally fitted for his AFOs and will presumably have them by tomorrow.
I had a visit this morning from the home health nursing group. They brought in the portable suction and pulse-ox meter we will be using when transporting Aidan and taking care of him at home. They'll visit the house tomorrow to bring in and setup some of the more "permanent" equipment (oxygen tanks, supplies, etc.).
As stated numerous times previously, we are starting Aidan on Hyperbaric Oxygen Therapy (HBOT) on Thursday with his first visit as soon as he is discharged from the hospital. Our therapist already gave us 10 free sessions, which is equal to one week of therapy, but we wanted to get more sessions lined up before Aidan was discharged. You know, one less thing to worry about.
Erin has been in contact with HUGS for Near-Drowning Children since we got to Levine in an effort to get assistance in paying for some HBOT treatments. After relaying various pieces of information to them, Erin received word that they will pay for a month of treatment (40 in all)! Erin also informed me that efforts are currently in place to pay for another 30 treatments. This means 2 months of treatments taken care of already!
Like Erin said, in two days we start yet another new chapter in our journey with Aidan. Honestly, I don't know what to expect or hope for at this point. All I know is there will be a lot of adjusting going on for the first few weeks when you consider the nurses and therapists coming in and out, doctor's visits (I know we have 2-3 already lined up in the first week), and the simple process of getting into a routine at home. I am pretty sure Erin and I will be asking for advice from some of our new friends in the near-drowning (ND) community on how to make this transition as smooth as possible.
To those of you offering to help, we greatly appreciate any and all assistance you can provide. Continued prayers are welcomed and encouraged.
-- Russell
2 comments:
I'm so glad to hear that you are being blessed with HBOT dives. It will make a huge difference in Aidan's life.
I'm praying that your transition to home will be smooth. I know how hard it will be, but just keep in mind that it will get easier as time goes by.
Love in Christ,
Sue
Praying for a easy release from the hospital and a wonderful HBOT treatment.
How is the job hunt?
Cindy.
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