Aidan is finally home after 2 months and a day of being in a hospital. We were supposed to be discharged from Levine around 10am but we didn't actually leave there until right at 1pm. We got our new car seat for Aidan and had to get it installed in the van, and we had to get all of his meds from the pharmacy.
We went straight to his first hyperbaric treatment. It went pretty well, and if he hadn't soaked his diaper and his clothes toward the end of the session he would have handled it really well. Aidan seemed to handle the pressure on his ears really well. So we're scheduled to do 2 sessions tomorrow, 1 on Saturday, 2 Sunday, Monday and Tuesday.
They are trying to figure out a way to get us a portable chamber at home, using the funds from HUGS and the other additional treatments we have lined up. That would definitely help with the travel time involved in doing these treatments. It's 45 minutes to and from the location. I'm sure that we'll have to raise some additional funds to facilitate getting our own chamber, but it would be well worth it.
The doctor said something that really made me feel very good today. She said that Aidan has shown a "non-traditional" response to his type of injury; meaning that he is doing much better than other patients she's seen with similar conditions. She said that she hopes and she really thinks that he'll continue to progress in this "non-traditional" way. It gives me hope to hear something like that come out of a doctor's mouth. Aidan has proven what a fighter he is. He overcame the odds that were against him and he survived near-drowning. Despite the brain injury, he is still fighting and I know that he will continue to do so. He's a tough, stubborn, little boy.
I wasn't going to drag this out because I'm exhausted, but I just want to thank everyone for their prayers.... the endless prayers, love and support for our family. I know that we wouldn't be
where we are now without the power of prayer. God has truly worked some miracles through our little boy, and will continue to do so. We are so blessed to have so many people who love and care for us. Our journey is just beginning, so we hope that Aidan will continue to be in your hearts and prayers. Thank you, everyone!love,
Erin
9 comments:
so nice to see you're home . . . (home sweet home) . . . did the doctor elaborate as far as the "non-traditional" response (what did she see that made her say that?). . . lifting you and yours up in continuous prayer . . . dragonflydreams
I'm so glad to hear that you are all home again. What a joy it is to know you will all sleep in the same home as a family should. I keep you in my prayers daily.What a awesome report from the Dr.!
Love in Christ,
Sue
It's great to hear that your family is together again in your home. I am looking forward to more details when time and sleep allow. It is great to hear that Aidan is doing better than they thought he would. My prayer's are still going out for you and your family.
I really love the picture of you and Aiden sitting on the floor. It looks like he is a lot happier, even a slight hint of a smile. :)
I know you are busy, I just want to thank you for taking the time to sit down and keep us informed.
God speed!
Cindy.
What a blessing to have your little man home. Prayer answered! Keeping you and your family in my thoughts and prayers. - Sabrina
congrats!!!! I am sooo happy for you. The pic you have of just him looks like he is looking at you. Did you ever find out what his eyesight is? Is he following objects now? Their is definitly more life behind those eyes now! Whatever you are doing, keep it up... i can see the difference in his eyes alone! Also check on stem cell treatments...not viable option in the states, but with some fund raising....you can make a trip. Love, Jen and family
We're friends of Wade Quinton's mom, in Virginia. We have been following Aidan's progress and praying for your little guy since the very beginning. We are SO HAPPY he is home with you. We've done a little research on the hyperbaric chambers and read of much success, and we are believing that the Lord has GREAT plans of healing Aidan fully! You're right, our Almighty God has already performed miracles for Aidan and He does have great plans for that little sweetheart! We will continue to read your updates - we pray for him LITERALLY every single day, Erin. We have two boys exactly your two boy's ages. Sorry to be so longwinded... you're just so on our hearts! Leslie & Brett Barkley, Charles Town WV
Congrats on bringing your handsome guy home. It's great that he's showing a different response than what the doctor expected. Looks like a sign of good things to come! Thank you so much for the updates.
(((((hugs)))))
Denise
Read your story in the post tonight. Was so glad to get an update on your little boys condition. My heart goes out to you and your family. July 18th of 1996 we lost our two year old son to a drowning accident. Our lives have been forever changed. We will check your blog often to see how things are going. Our prayers are with you. Ron & Maresa Davis
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